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Post-Polio Health International (PHI), is a relatively new name for a non-profit organization that officially began its work in 1960. For many years it was known in medical, rehabilitation, and disability circles variously as GINI, or the International Polio Network, or the Rehabilitation Gazette Network,〔(History of PHI )〕 or more familiarly as Gini’s Network, in honor of Gini Laurie, its founder and driving force until her death in 1989.〔(Virginia Grace Wilson “Gini” Laurie, 1913-1989 ) See also Tony Gould, ''A Summer Plague''. New Haven: Yale University Press, 1995. Pages 214-226.〕 PHI’s mission is to enhance the lives, health, and independence of polio survivors, as well as those in the cross-disability category of home ventilator users, who are addressed through a subsidiary organization called the International Ventilator Users Network (IVUN).〔(International Ventilator Users Network )〕 PHI’s headquarters are in St. Louis, Missouri, where it has a small paid staff. Otherwise, it is run by volunteers, including a board of directors and various advisory committees.〔(PHI Board Members & Committees )〕 Financial support comes from donors, sponsors, member/subscribers, and also from a group of “association members” consisting of local and regional polio support groups. ==Activities== PHI publishes two quarterly newsletters, ''Post-Polio Health''〔''Post-Polio Health'', ISSN 1066-5331, published quarterly since 1985, is a successor to PHI’s ''Rehabilitation Gazette''.〕 and ''Ventilator-Assisted Living''.〔''Ventilator-Assisted Living'', ISSN 1066-534X, published quarterly since 1987, is a successor to PHI’s ''Rehabilitation Gazette''.〕 It runs a telephone and e-mail answer-line during business hours, responding to requests from polio survivors, clinicians, researchers, and journalists. Its websites are updated almost every business day, and have a searchable archive of information on polio, post-polio syndrome, and independent living. It has recently begun to fund a modest amount of scientific research related to its mission – usually pilot studies,〔(Learn about The Research Fund of PHI )〕 and occasionally to manage research projects for other organizations such as the Christopher and Dana Reeve Foundation.〔(“Take Charge, Not Chances” project )〕 Increasingly, it is addressing the need to organize and fund a digitized archive of information on polio, and living with polio, that is relevant to all neuromuscular disabilities. And it has been working with other organizations to include rehabilitation for polio survivors in the current program for the worldwide eradication of polio. PHI’s core constituency is in North America, but its networks of polio survivors, clinicians, scientists, and historians have always been widely international. This is true also of its medical and consumer advisory committees (the latter now being explicitly an international committee),〔 attendance at its international conferences, the extent to which it communicates with polio and disability organizations in Europe, South America, Asia, Australasia, and Africa,〔(“We’re Still Here” campaign, October 14-20, 2007 )〕 and the extent to which its work is known by international organizations.〔The World Health Organization for example, in the course of describing its worldwide polio eradication initiative, devotes a page to “the disease and the virus.” See http://www.polioeradication.org/disease.asp〕 PHI also holds a substantial archive of materials on living with polio. PHI is not itself a support group, but rather a network and resource for such groups. It is not a treatment facility, but rather a directory to such facilities and a reference desk for information about specific polio or ventilator related problems. Its many publications such as its ''Handbook'',〔Maynard, Frederick M. and Joan L. Headley, eds., ''Handbook on the Late Effects of Poliomyelitis for Physicians and Survivors''. Published by PHI. Funded by the March of Dimes. Second edition, 1999. ISBN 0-931301-04-1.〕 its two quarterly newsletters, its informational brochures on the late effects of poliomyelitis (published in Chinese, Persian, French, German, Italian, Japanese, and Spanish), and its occasional formal statements on controversial issues such as physical exercise and on anesthesia for people with neuromuscular disabilities are widely referenced.〔See (Post-Polio ) on MedlinePlus〕 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「Post-Polio Health International」の詳細全文を読む スポンサード リンク
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